I haven’t written much lately. Am I bored with writing? No! Have I run out of things to say? Never! Do I have writer’s block? No! I think I’ve got reader’s concern.
Over recent years, I have found it therapeutic to take a light hearted approach to sharing my experiences of living with Parkinson’s, in the same way I might laugh with friends as we discuss the consequences of aging or any other challenge in life. However, as is the nature of Parkinson’s, as it the progresses, new symptoms impose themselves uninvited as existing ones become more troublesome. Naturally it becomes harder to find a light hearted angle with which to describe some of these experiences and I’ve become concerned that sharing my experience may be perceived as simply complaining.
I’m grateful that family, friends and indeed, strangers read this blog and I am acutely aware that everyone has their own challenges. In the same way that I never want to be the person that people avoid for fear I’m going to start complaining and never stop, I don’t want to be responsible for a thoroughly depressing read when a new blog alert appears. So, I have held back over recent months, taking Thumper’s advice that ‘If you can’t say something nice, don’t say nothing at all.’
There is nothing positive, endearing or helpful in simply complaining. To explain, however, makes for a greater understanding and there is much that remains misunderstood about Parkinson’s. I hope that sharing my experiences might help change this in some small way.
Parkinson’s is a fascinating and intriguing condition to live with. It persists in surprising me and catching me unawares. It is always present, yet frustratingly unpredictable and so I hope that by sharing my experiences honestly and openly, they may help generate a greater understanding of this complex condition.
For me, the challenge is to strike the right balance between explaining and complaining. A balance which shares the experience, informs and educates, yet is mindful of the fact that everyone has challenges in their lives, that it’s not all about me and that no-one ever made things any better simply by complaining about them!
PS Mum, don’t worry, you’ll be the first to hear if I start complaining!
Challenging Times 
You write wonderfully Alison; when I see that you’ve written something, it’s always the first thing I choose to read. You explain things so well, without a hint of complaining. Huge admiration from me, thank you for sharing your stories and struggles xx
Your writing is always very upbeat Alison, but there is something to be said for allowing yourself a moan now and again. Anyway if you ever need a good moan fest I’m your woman! 😁
Lovely to have you back with us – your blog and approach to life with Parkinsons is real and practical and your approach to the various challenges inspiring. I look forward to reading your blog with its mix of humour and practicality – never complaining. always helpful. Keep it up
Les
I have never heard you complain Alison, your blogs are funny and thought provoking. I know you have been quiet of late, there are never enough hours in the day for all you achieve. I am so proud to be your Mum, love you xxxx
You never complain, Alison. Do you know why? Because there’s absolutely no point. Because there is no time or energy to be wasted on futility. You explain, you bear witness, but you do not complain. Stay strong, my friend. Paul
Great to ‘read’ from you again. You have indeed been a little quiet, and to that you are entitled! Complaining? I have never read a blog of yours and thought that. Your blogs help you, I hope, and they help us to learn and understand. Looking forward to the next one. Xx