No Excuses

It was a beautiful day, there was no excuse not to go out on bike and I was keen to get another few miles training in. 36 miles, a decent 1,913 ft of climbs which I managed although to say I managed them with ease would be a stretch to far. Soon I will have to try these climbs with 20kg of kit loaded onto the bike but that’s for another day. I started out slightly wobbly and slow, not feeling the full benefit of my Parkinson’s medication but fortunately, an extra dose helped and within the 45 minutes or so, I was enjoying the ride.

I am intrigued to see how Cleeve Hill which I cycled from the Winchcombe side today compares with some of the climbs we will be doing in America. Here are a few Cleeve Hill from Winchcombe statistics as a baseline. Some comparisons to follow later.

Distance: 2.1 miles (3.4km)

Elevation Gain: 449 ft (137m)

Average Gradient: 4.0%

Steepest Gradient: 9.2%

As you can see from today’s route profile below, Cleeve Hill was on the homeward stretch of the ride. I was tired and it felt more challenging than I recall from times in the past but I was reassured that it was still manageable. I am reminded of the time we cycled Cleeve Hill 14 times in one day for the Raid Alpine challenge. There is absolutely no chance of my being able to do this today!

Parkinson’s Points

There is a huge difference when cycling in terms of my balance, posture, reaction times, energy, stamina and confidence when my Parkinson’s medication is working well (‘on’ time) and when it doesn’t work so well (‘off’ time). I am meticulous about taking my medication on time. Everyone I know with Parkinson’s is. If only this was all that was necessary to maintain a steady, consistent ‘on’ time but the effectiveness of Parkinson’s medication has a completely unpredictable, erratic side to it which at times escapes any control we might try to impose.

Hormones, stress levels, tiredness, what and when we eat in relation to the time we take our medication, and extremes of temperature are just a few examples of things that are known to impact our ‘on’ and ‘off’ time. To some degree we might be able to control some of these things, some of the time. However, one of the most challenging aspects of living with Parkinson’s is the staggering difference between being ‘on’ or ‘off’ and its unpredictable nature despite doing all that we can to maintain control..

Perhaps, ‘on’ and ‘off’ in relation to cycling is best portrayed by the following short video clips. You can instantly tell whether I am ‘on’ or ‘off’ simply by my posture and the effort and concentration involved in balancing and pedalling.

‘On’ – Easy enjoyable cycling along cycle path in France on the way to Barcelona.
‘On” – good posture and confident cycling.
Hesitation / difficulty when starting to walk is a common phenomenon in people with Parkinson’s. I think that this is a cycling related version that this video captures. Once I get started, the hesitation / difficulty experienced to get moving eases off and I can cycle. You will note my posture is still very asymmetrical once I get started. Thankfully changes to my medication have stopped the problem for the time being.
‘On’ – symmetrical posture and a lovely downhill stretch of cycle path along the cliffs on the way to Newhaven ferry terminal during our Bike to Barcelona challenge.
Cycling (of sorts) through France on the way to Barcelona. It is clear to see how asymmetrical my posture is and how slowly I am cycling and the contrast between my posture in this video and in the one above. I recall the concentration needed simply to keep my balance at this time.

4 thoughts on “No Excuses

  1. Hi Alison: Kathy and I are following your preparations with interest. Remember that we are in Seattle, not too far from the Oregon Coast (which we love as one of our favorite places on earth). Would love to be of help in any way we can. Do you and the group need logistical support in getting bikes and gear to the start of the ride? Do you have dates yet and where you’ll be flying into?

    1. How wonderful to hear from you both. I’ll message you directly regarding our plans. We are so grateful for your offer of help and would love to see you both. Hope you have both enjoyed your recent adventures. xx

  2. Thank you for sharing the videos of you when your meds are off. These could be videos of me and I know how exhausting and uncomfortable it is when this is happening. You are a wonderful inspiration to me to show what can be achieved despite the difficulties. I feel spurred on by reading your blog to not be deterred by the challenges that having Parkinson’s poses and to absolutely live life to the full. With very best wishes, Amanda Mon, 10 Mar 2025

    1. Amanda. Thank you so much for your kind words. It’s so lovely to hear that you feel spurred on by the blog. I think it’s always good to know we’re not in it alone. X

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